How We Got Here

  • In a pilot observational study, 19 lung cancer patients and 3 caregivers were interviewed about their preferences and priorities for treatment as well as their preferred ways to communicate with their oncologists. Insights and feedback gleaned from these conversations informed this quick guide, which includes 2 CME programs sponsored by MD Anderson and featuring expert thoracic oncologists at MD Anderson and City of Hope.

    This guide is intended to provide recommendations and best practices for effective shared decision making between physician and lung cancer patients, considerate of a real-world environment. Recommendations align with both the AHRQ SHARE program and the National Quality Partners Playbook™ on shared decision making.

    A Selection of the Research Findings Include:

    • Patients appreciate and prefer one-on-one, in person communication with their physicians regarding their treatment.

      One-on-one, in person communication alleviates anxiety regarding the treatment

    • Patients prefer to talk about their treatment plan the first time their physician brings up treatment.

    • Patients have more confidence in their doctors and the treatment plan when their doctors do a lot of reiterating and give reassurances that they would work with the patient to achieve a good outcome

    • Patients generally feel confident to develop a treatment plan with their doctor; patients feel confident and hopeful about their treatment plan after having conversations with their physician

    • Most patients feel apprehensive, yet hopeful upon receiving information on their treatment plan from their physicians

    • Patients who conduct additional research on the treatment plan advised by their physician end up with a positive perception of their treatment plan compared to those who do no additional research

    • While most patients want their doctors to act quickly and aggressively if needed, they also want them to seek treatments that their bodies can handle and help them manage the side effects or anticipate and prophylactically treat them before they occurred

    • Physician communication with patients should be a balance of their own recommendations and the patient's questions

    • Patients want their doctors to be accessible if they have questions and be open to their concerns and suggestions

    • Patients feel comfortable sharing their hopes and expectations directly with their physician

  • I tell my patients knowledge is POWER

    - Yasir Elamin, MD
  • Faculty:

    • George R. Simon, MD, FACP, FCCP

      Professor, Department of Thoracic/Head and Neck Medical Oncology
      The University of Texas MD Anderson Cancer Center

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      Yasir Y. Elamin, MD

      Assistant Professor, Department of Thoracic/Head and Neck Medical Oncology
      The University of Texas MD Anderson Cancer Center

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      Howard (Jack) West, MD

      Associate Clinical Professor in Medical Oncology Executive Director, Employer Services
      City of Hope Comprehensive Cancer Center

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      Elizabeth Farfan-Santos, MD, PhD

      Assistant Professor, Department of Comparative Cultural Studies
      University of Houston

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      Michelle Keating, RN, OCN, MSCN

      Nurse Consultant
      St. Louis, Missouri

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  • They have to do a lot of reiterating with me—the reassurance that they would work with me gave me more confidence by them just willing to work with me.

    -Roepal, lung cancer patient